- Facilitation expertise and consulting activities for the “Engaging University of California Stakeholders for Biorepository Research” project
- Holly was engaged to provide facilitation services and expertise for this bilingual deliberative democracy project. The events that comprised this study took place in Los Angeles and San Francisco, California. The outcomes of the deliberations were intended to inform exemplary procedures for biorepository collection and operations at University of California (UC) patient clinics – the setting where most of UC’s 12 million patients receive care.
A full-service consultancy, we will take care of your entire engagement process-crafting strategy, staging and facilitating events, conducting reporting and analysis. We also offer discrete services-from the moderation of one-off events and meetings, to strategy development and public participation process design.
The partners of Engage Associates have unique real-world experience in the broad sub-disciplines of health related ethics. We use a problem-based learning approach to ethics education that constructs cases around current challenges faced by those working in research or clinical environments.
- Project: Fostering Big Picture Ethical Awareness in Relation to the CIHR Health Research Themes
- Engage Associates developed an ethics education “training kit”, which includes a series of scenarios developed for each CIHR theme. The ‘big picture’ or holistic approach to ethics taken in this project is inspired by a conceptual framework developed by CIHR. This framework addresses the complete lifecycle of knowledge creation and translation relevant to researchers funded by CIHR and includes a wide variety of elements from data collection to sustaining knowledge use. The final version of the learning modules will assist researchers funded by CIHR to understand the ethical dimensions of their work by fostering a general sense of ethics awareness.
- Project: Updating and Rewriting Ethics Guidance Documents for Health Canada and the Public Health Agency of Canada
- Guidance documents in ethics are not intended to be static. They must be revised and modified over time to reflect new scientific and policy advancements as well as the ongoing needs of human subjects. In addition, these documents must be internally consistent and communicate their messages clearly in order to effectively serve the needs of those who use them. There were important changes to the Canadian ethics landscape in 2012 including the introduction of the CGSB Standards and the 2010 update to TCPS2. Holly and Alice were engaged to update and revise portions of Health Canada’s guidance documents to be consistent with these new materials.
In order for projects to have maximum impact, applicability and uptake, Engage Associates recognizes the importance of ensuring that research is informed by the existing policy landscape. Considering critical contextual factors such as existing guidelines, polies, and regulations allows us to ensure that our research results and reports are directly relevant to current policy. Such policy relevant research eases successful and effective translation into real-world solutions.
Engage Associates offer comprehensive research services to help our clients gather detailed information, develop and test theories, solve new or existing problems, and evaluate the uptake of new products or services.
- Project: Ethics & Professionalism – Distinguishing Organizational, Public Health, and Research Ethics
- There continues to be confusion among the general public, public health practitioners, and even ethicists regarding the similarities and differences between organizational ethics, public health ethics, and research ethics. While these unique realms of ethics do share some similarities, and do overlap in limited ways, they each represent distinct fields of inquiry and practice. The objective of this study was to clarify the similarities and differences between these fields and describe the characteristics of each in a Power Point presentation with complimentary speaking notes. In addition, six to twelve case studies (representing each field) that present the core ethical issues were developed. The intended audience for the 60 minute presentation and associated case studies is general, with varying levels of understanding of ethics. The presentation and cases were based on the expertise of the partners of Engage Associates as well as the results of a comprehensive literature review.
- BCEHI ethics review evaluation project: Minimal risk model
- The BC Ethics Harmonization Initiative (BCEHI) aims to create efficient, coordinated, and high-quality processes that support and encourage multi-jurisdictional human health research. The aim is to make BC a more attractive environment for research activity. It is funded and facilitated by the Michael Smith Foundation for Health Research. The BCEHI is a collaborative effort among British Columbia’s regional health authorities and four major research universities, who collectively conduct more than 80 percent of the province’s human subject ethics reviews. The initiative recently piloted a harmonized ethics review model for minimal risk studies. Holly and Alice were engaged to provide feedback about their proposed evaluation approach.
The partners of Engage Associates are always available to provide expert advice and guidance to our clients on subjects related to health ethics and policy.
The Interagency Advisory Panel on Research Ethics (the Panel) provides helpful TCPS2 interpretations on their website.
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